Having kept this purpose in mind, I have chosen the title "The Adult Consequences of Spina Bifida" with the intent to review the outcome studies documenting our successes, and unfortunately in some cases our failures.
Having kept this purpose in mind, I have chosen the title "The Adult Consequences of Spina Bifida" with the intent to review the outcome studies documenting our successes, and unfortunately in some cases our failures.Tags: Business Plan Proposal TemplateBook Review Essay OutlineCreative And Critical ThinkingEssays On Socialism And Communism In The 1920'SScience Fair Research Paper HelpOcr As Electronics Coursework
Those individuals born between 19 would have benefited from having their hydrocephalus shunted, however, urological care was not as sophisticated as it is today.
Urodynamic monitoring of bladder function and intermittent straight catheterization had not been developed.
The major question is "how often are adults with spina bifida leading successful and productive lives?
" There are several studies addressing the quality of life, level of independence and self-determination. Using the Objective Checklist – ACL Autonomy scale, the Days of Coping Checklist – WCC Problem Focused Coping Scale and the Denver Self Care Aging Journal, Monsen  showed that adolescents and young adults with spina bifida are less independent than a matched comparison sample of adolescents and adults without spina bifida.
BACKGROUND: Having a chronic physical disability affects many aspects of a person’s life beyond his or her general health (Eiser 1997). Many people with SB rely on some form of assistive technology for mobility, such as wheelchairs, crutches, or orthoses.
Myelomeningocele, the most severe form of spina bifida (SB), is commonly associated with hydrocephalus, Chiari II malformation, diminished or absent sensation or motor function in the lower limbs, and impaired bowel and bladder control (S. Regardless of the type of assistive technology used, restricted mobility has been linked to poor social integration (Blum 1991; Dicianno 2009).The Casey Holter Memorial Lecture was established and funded to preserve the memory of Casey, John's son who was born with hydrocephalus.The purpose of the Casey Holter Memorial Lecture is to encourage original thinking in a way to improve the care of individuals with spina bifida and hydrocephalus.The patients who were born prior to 1950 would not have benefited from the shunts we have today for hydrocephalus.Very few adults born with spina bifida prior to 1950 are alive today, as most of those infants would have died in childhood from complications of hydrocephalus.The unfortunate statistic is that 49% were clearly unemployed and had no hopes of ever finding jobs.There are many reasons why adults with spina bifida may have difficulties in finding a job.I am honored to be the Casey Holter Memorial lecturer.All of us in the Society miss John Holter very much!Their study showed that only 17% of individuals with spina bifida were fully employed and 14% were part-time employed.Fourteen percent of the adults were still in training while 6% could not find a paying job and volunteered as unwaged workers.